Next Step in Care: Family Caregivers & Health Care Professionals Working Together

Links and Resources

Disease- and Condition-Specific Organizations

Alzheimer’s Association, National
225 North Michigan Avenue, Suite 1700
Chicago, IL 60601-7633
800-272-3900 (toll free)
The Alzheimer’s Association works to advance research to find a cure for Alzheimer’s disease. The site offers information about Alzheimer’s disease and links to community resources, which are available via zip code or state-by-state search. The Caregiver Center features advice about managing behavior, legal and financial concerns, and other information.  There is a 24-hour helpline. The Alzheimer’s Association also has chapters all over the country, and many have their own robust websites. Recently, some chapters have formed their own independent organizations. For New York City, see CaringKind below.

American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231-4596
800-AHA-USAI (800-242-8721) (toll free)
Women's Health: 888-MY-HEART (888-694-3278) (toll free)
The American Heart Association is a national non-profit organization that works to educate the public on issues related to cardiovascular diseases and stroke. Their website offers information for patients, caregivers, and health care professionals. The caregivers’ section, “Heart of Caregiving,” features information on caregivers’ rights, communicating with patients and healthcare professionals, and tips to assist caregivers maintain their own health and well-being. The American Heart Association also has an online community for heart attack survivors and their family caregivers called the Support Network.

American Parkinson Disease Association, Inc.
135 Parkinson Avenue
Staten Island, NY 10305
800-223-2732 or 718-981-8001
APDA focuses its energies on research, patient services, education and raising public awareness about Parkinson's disease. APDA supports nine Centers for Advanced Research, 52 regional Information and Referral (I&R) Centers, 45 chapters, and 250 affiliated support groups nationwide. There is a dedicated I&R Center for veterans with Parkinson's, their families, and their health care professionals.

American Parkinson Disease Association, Inc./APDA National Young Onset Center
25 North Winfield Road
Winfield, IL 60190
1-877-223-3801 or [email protected]
The APDA National Young Onset Center focuses on developing education and support services that address the unique needs of young people with Parkinson's disease, their family members and friends as well as their healthcare team.

American Stroke Association (A Division of the American Heart Association)
National Center
7272 Greenville Avenue
Dallas, TX 75231-4596
888-4-STROKE (888-478-7653) (toll Free)
The American Stroke Association offers information and support to stroke patients and their caregivers, including a free subscription to Stroke Connection Magazine. The American Stroke Association also has an online community for stroke survivors and their family caregivers called the Support Network.

Cancer Care, Inc.
275 Seventh Avenue
New York, NY 10001
800-813-HOPE (800-813-4673) (toll free)
Cancer Care’s website provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. Cancer Care has educational programs for patients and caregivers, counseling services, and financial assistance. Services are available online, on the telephone, and in some cases face-to-face. Many resources and services are also offered in Spanish.

CaringKind (formerly, the New York City Chapter of the Alzheimer's Association)
360 Lexington Ave., 4th Floor,
New York, NY 10017
The website provides information to Alzheimer’s patients and their caregivers, on clinical trials and research studies in the New York City area, as well as contacts and information on education programs and support groups.

Facing Disability: for families facing spinal cord injuries
Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. A project of The Hill Foundation, is designed to provide information and support by connecting families suddenly faced with a spinal cord injury with the real-life experiences of others who have been there before them.

Lighthouse Guild

250 West 64th Street
New York, NY 10023
800-284-4422 / TTY 711

Lighthouse Guild is a nonprofit organization dedicated to helping people of all ages overcome the challenges of vision impairment and vision loss. Based in New York City, Lighthouse Guild is a leading not-for-profit healthcare organization dedicated to addressing and preventing vision loss through coordinated vision and health services.



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